I don't often do this but as you can imagine this is quite pertinent to me.
ACTION NOW are running a campaign for the next 2 weeks and are asking ME patients (that's me) and their family and friends (that's you) to send the following email to ask for a change in UK policy. If you can spare a few minutes to do this, that would be great. Thanks.
Send to:
1) Andrew Lansley, Secretary of State for Health
2) Sally Davies, Chief Medical Officer at the Department of Health
3) John Savill, Chief Executive of the MRC
Contact info:
1) Rt Hon. Andrew Lansley, Secretary of State for Health
Email: lansleya@parliament.uk, DHMail@dh.gsi.gov.uk
Cc: ukpolicychange@gmail.com
Telephone: 020 7210 4850 Fax: 020 7210 5952
2) Dame Sally Davies, Chief Medical Officer, Department of Health
Email: CMOweb@dh.gsi.gov.uk, sally.davies@dh.gsi.gov.uk
Cc: ukpolicychange@gmail.com
3) Sir John Savill, Chief Executive of the Medical Research council
Email: Linda.Willmott@headoffice.mrc.ac.uk (personal assistant's name)
Cc: ukpolicychange@gmail.com
Telephone: +44 (0)20 7670 5155
Fax: +44 (0)20 7580 4369
Message -
"Please would you stop allowing the policy to support the refuted psychiatric model of ME/CFS, which presumes that ME/CFS has no organic basis and is therefore contradictory to current science and research on XMRV and other viruses. Please instead pledge to make a definitive policy change NOW, as patients and their families and friends are waiting.
Thank you.
Yours sincerely,
{Your Name)
Friend of an ME patient
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